Deborah Johnson Lanholm, 63, lives in Sicklerville, New Jersey. A retired nurse, she’s the primary caretaker for her older sister, Helen Palese, who lives with amyotrophic lateral sclerosis, or Lou Gehrig’s disease. “She’s nonverbal,” Deborah says. “I do her speaking for her. So every other day, we do something together. We go to the movies. I take her to my crocheting group. We go out to dinner or the mall. But she’s with other people. All of that will have to stop because she’s too compromised.”